The Alagille Syndrome Alliance (ALGSA) is the leading 501c3 patient advocacy organization in the world serving families affected by Alagille Syndrome, a rare cholestatic liver disease and one of over 7,000 rare diseases in the world.
The ALGSA staff and board is made up of professionals in the ALGS community including patients, caregivers, and friends all deeply understanding of the complex and difficult nature of ALGS.
OUR MISSION STATEMENT: Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, emopower, and enrich the lives of people affected by Alagille Syndrome.
OUR VISION: ALGS Warriors thrive in a close-knit community full of loving support, easily accessible resources, and life affirming hope.
